Look what the homosexuals have done to me!

Category: Brainpan

Parkinson’s: Two Years Later

So much for last year’s prediction that “As I learn better strategies for working within my limitations … it should be easier to make more time for this site.” Since then I’ve shared only one review and a short remembrance of Millicent Dillon, unhappily constrained by the (mostly) invisible Parkinsonian forces that interfere with my daily life. My goal of resuming a normal posting schedule this summer is unchanged, and if that’s overly ambitious we’ll cycle through the rest of the seasons until Patty Duke’s crusading for justice once more. But we’ve gathered here today for our second annual year-in-Parkinson’s review, so let’s get it out of the way.

Parkinson’s: A Year Later

You may have noticed I’ve been AWOL lately, but I’ll return with more TV movie reviews this summer. Earlier this month I planned to write a post about the ways in which my life has — and hasn’t — changed since being diagnosed with young-onset Parkinson’s disease last June. The anniversary of that date came and went, lost in the shuffle of everyday life, including some YOPD nonsense that’s been taking up a lot of my time these days. I might as well address some of it now.

Parkinson’s, Part II

8/27 update: Twirl review coming by Tuesday at the latest; got waylaid by continued shoulder problems. Thanks for your patience!

TV movie fans: I’ll be back soon with a look at “Twirl,” a very special exploration of the ultra-competitive world of baton-twirling starring Lisa Whelchel and Erin Moran.

“How has your mood been lately?” the neurologist asked last week at my first follow-up appointment since being diagnosed with early-onset Parkinson’s in June. I was there for the neck and shoulder Botox injections that were previously delayed by levodopa adjustments, but she set aside extra time to discuss the diagnosis itself since our last meeting had been rushed.

“I’m told there’s room for improvement,” I replied modestly.

“Are you depressed?”

“I’m not sure if I’m depressed-depressed. But it’s depressing to be told at 40 that you have Parkinson’s.”

The Joker Card: Parkinson’s at 40

Let’s cut to the chase for this one, without our usual banter. This week the neurologist confirmed that my recently diagnosed dystonia is a symptom of what we hope is young-onset Parkinson’s disease (YOPD). I say “hope” because there are a few exceedingly unattractive alternatives that are initially difficult to distinguish from Parkinson’s. All are clinical diagnoses, not things she can easily test for, and while those rare conditions are likelier to strike people 60 and older, some can emerge in one’s forties. You can read more about YOPD here.

My wife, Crankenstein, accompanied me to the appointment because she knew what was coming and wanted to talk with my movement disorder specialist (MDS). She shared observations about my muscle rigidity and bradykinesia, sleeplessness, diminished sense of smell and increasingly inexpressive face, which the doctor also noticed. We cataloged the positive changes that I experienced on carbidopa/levodopa, a Parkinson’s medication. Mostly I sat there trying to fend off trepidation after my physical exam left Crankenstein ashen.

Nocturnal Omissions

First of all, TV movie fans, I’ve planned something special for Mother’s Day, so stay tuned for that. But this post is about a sleep experiment recently conducted to better answer my neurologist’s question about overnight behaviors. An ex complained quite a bit about my sleep but my deep-sleeper wife never has, so I needed a way to watch it myself.

Thrilling Answers to All Your Dystonia Questions

Last month I pledged to answer questions about the strange turn my lengthy medical mystery took after I was sent to a neurologist. Here it is, in Q&A form. To spice things up, you can pretend the late James Lipton, host of Inside the Actor’s Studio, conducted the interview. And, as always, more telefilm reviews are coming soon, including special appearances by our patron saints, Kate Jackson and Judith Light.

How are the Botox and levodopa going?

The first round of Botox is already wearing off, which is normal earlier on, as the doctor experiments with dosages and injection sites. The levodopa has been great for my dexterity, slowness and rigidity, which confirms the neurologist is on the right track. Now the question is whether I have dopamine-responsive dystonia or young-onset Parkinson’s. In June I’ll learn whether I have to undergo more tests or if the doctor has already made a decision.

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